Financial transparency
We publish verified amounts only. We clearly separate money received from sponsorship pledges and from amounts committed to projects, and every financial change is logged.
Funds at a glance
Financial reporting begins with the first verified entry
There are no verified amounts for the campaign yet. This page updates automatically after every payment confirmed by the payment processor and every reconciliation of the bank statement by our treasurer. Below you can see how each amount will be calculated and reported.
Donate nowBy funding category
- Research grants
- Funding for selected research projects, under an agreement with a documented budget.
- Scientific collaboration
- Scientific meetings, sharing of data and models, international collaboration.
- Patient community
- Information and support for families of children with SPG4 and for the community of people with SPG4.
- Information and awareness
- Awareness campaigns about SPG4 and educational materials.
- Fundraising costs
- Payment fees, materials and tools for fundraising.
- Running the association
- Accounting, audit, website hosting and other running costs.
Reports and documents
Monthly reports, annual financial statements and other documents, available to download.
The first monthly report will be published after the first month with verified income.
How we calculate and verify
The rules below are applied automatically by our record-keeping system. We publish them so you can check for yourself how we arrive at every figure.
What “verified” means
An amount is verified when the payment is confirmed by a signed notification from the payment processor, or when our treasurer has reconciled it against the bank statement or the donation platform's official report.
Pledges are not money received
Amounts promised under sponsorship agreements are shown separately and are not included in the total raised until the money actually arrives.
Committed, spent, available
“Committed” means money approved for a project under a signed agreement. “Spent” means payments made, with supporting documents. The available balance is the difference between amounts received and amounts spent.
Every payment, counted once
Each payment has a unique reference per channel, and the system automatically rejects duplicates. Payouts from payment processors or Bursa Binelui are never recorded a second time as bank transfers.
Lei and euros
The campaign goal is in euros. Amounts received in lei are converted at the reference rate published by the National Bank of Romania for the transaction date, and the rate used is stored with each entry.
Corrections and audit trail
Financial entries are never deleted. A mistake is corrected by voiding the entry with the reason recorded, and every change stays in the audit log with the date and the person who made it.
Donor privacy
We never publish donors' names or amounts linked to an identifiable person.