Skip to content
IvaCaterina’s Waymakers
A modern glass and steel atrium with a suspended staircase, in soft dusk light.

Partnerships for children with SPG4

Companies can fund the research stages that are hardest to finance in a rare disease that can begin in childhood — through a clear sponsorship contract, with verifiable reporting on how the money is used.

AI-generated illustrative image. It does not depict real people, patients or partners.

Why partner with us

Partnering with us means funding directed to science, in a relationship where every amount can be traced.

  • Impact where funding is missing

    Rare diseases attract little commercial investment. A company’s contribution can support precisely the early stages that open the way to grants and larger studies.

  • Reporting you can check

    We publish amounts received, committed and spent separately. Partners receive reports on the activities and projects they supported.

  • A clear legal framework

    Every sponsorship is based on a written contract under Romanian Law no. 32/1994, with a defined object, value, duration and obligations.

  • A cause employees can take part in

    Briefings on SPG4 and genetic research, volunteering and internal giving campaigns, adapted to your company’s culture.

What you can support

You can choose a direction, or we can build a package together. The use of funds is set out in the contract.

A research project
Full or partial funding of a project selected through independent scientific review, with documented objectives, budget and timeline.
Research infrastructure
Resources that several studies can build on — for example, patient-derived cell models, obtained with the patients’ consent and ethics approval.
Awareness and information
Scientifically checked materials about SPG4 in Romanian, for families, doctors and the wider public.
Employee programmes
Internal giving campaigns in which the company can match employee donations, and briefings at your offices or online.
Expertise and in-kind support
Pro bono services — legal, accounting, IT, communications, logistics — or goods the association needs, documented in writing.

Sponsorship packages

Benefits are limited to name and brand visibility and to reporting, as the law allows. The exact amount, duration and use of funds are agreed together in the contract.

Proposed packages — can be tailored

  • Research supporter

    Proposed contribution

    €5,000

    For companies that want to contribute to the research fund for children with SPG4 and show that commitment publicly.

    • Sponsorship contract under Romanian Law no. 32/1994
    • Company listed on the partners page and in the annual report, with its consent
    • Annual impact report covering funds and projects
  • Recommended

    Research partner

    Proposed contribution

    €20,000

    For companies seeking an ongoing partnership, with dedicated reporting and team involvement.

    • Everything in the Supporter level
    • Company logo on the campaign page, with its consent
    • Dedicated half-yearly report
    • A talk for employees about SPG4 and genetic research
  • Founding project partner

    Proposed contribution

    €100,000

    For companies that want to back a documented research project, from selection to results.

    • Everything in the Partner level
    • Association with a documented research project, with the research institution's consent
    • Quarterly progress reporting on the project
    • An annual meeting with the project's scientific team

Sponsorship presentation

A short document about the association, the campaign, sponsorship opportunities and how we report, which you can share with colleagues.

to be confirmedThe presentation is being prepared. You can request it through the form and we will send it as soon as it is available.

Request the presentation

The sponsorship contract

We draft the contract based on our conversation: object, value, duration, use of funds, the rights and obligations of both parties, and how we report. You can send it to your legal team and accountant for review before signing.

Request a contract

Let’s talk

Tell us briefly what you are interested in. We reply within five working days.

What happens next

  1. We reply within five working days and arrange a conversation.
  2. We propose a use of funds and a suitable package.
  3. We send you the draft contract for review by your legal team and accountant.
  4. Once the contract is signed and the funds received, we report regularly on how the money is used.

Or write to us directly: contact@ivacaterina.org

An approximate range, in euros or lei, helps us suggest the right option.

A few lines about your company and what you would like to support.

Frequently asked questions

See our financial reporting